Lots of things happened from that point on and in all fairness I have forgotten how hard it was. It is hard to remember the times when she didn’t talk as she chatters constantly in my ear. It is hard to remember when she wouldn’t eat as she stuffs her face full of McDonalds. It is hard to remember how she couldn’t walk without her walking frame as she plays in the garden. We are not there yet by any means, she has good days and bad days but we have come so far and been through so much as a family.
Without this blog and the support I have received I don’t think I would have got through this in any semblance of normality but we are nearly there.
She still has bad mood swings but hopefully the new change in steroids will reduce those and Alison still has some separation issues when we have to go to hospital but that is to be understood.She still can not walk far and is nowhere near as physically able as she once was but she smiles a lot more and her hair is growing back nicely and she has piled on all the weight she lost.
Reading all my blog posts from September last year are heartbreaking but I know they will be useful for people in the future, maybe even for Elizabeth herself. I know they help to remind me of everything we went through and to show me just how far we have come.
I may still be a parent of a child with cancer but this last year has been one of appreciating each other, filling each day with smiles and making as many happy memories as we can.